¹Dorset County Hospital, Inflammatory Bowel Disease Nursing, Dorchester, UK, ²Dorset County Hospital, inflammatory bowel disease, Dorchester, UK

Charlotte Höög Susana Soto Vilagran Amanda Lundgren Maria Nordin Anna Nordström, 1GHP Stockholm Gastro Center, Karolinska Institutet Danderyd Hospital, Stockholm, Sweden

¹King’s College London, Florence Nightingale Faculty of Nursing-Midwifery and Palliative Care, London, UK, ²King’s College London, Health Psychology Section, London, UK

¹Hospital San Juan de Dios del Aljarafe, Unidad de investigación, Sevilla, Spain, ²Hospital San Juan de Dios del Aljarafe, Digestive department, Sevilla, Spain, ³Hospital San Juan de Dios del Aljarafe, User support, Sevilla, Spain, ⁴Hospital San Juan de Dios del Aljarafe, Quality unit, Sevilla, Spain

Tallaght University Hospital, Gastroenterology, Dublin 24, Ireland

Mercy University Hospital, Department of Gastroenterology, Cork, Ireland

¹King’s College London, Florence Nightingale Faculty of Nursing- Midwifery and Palliative Care, London, UK, ²University of Greenwich, Faculty of Education and Health, London, UK, ³King’s College London, Institute of Psychiatry, London, UK

¹Department Of Gastroenterology, Antrim Area Hospital, Antrim, UK, ²Royal Victoria Hospital, Ambulatory Care Centre, Belfast, UK, ³Department Of Gastroenterology, Causeway Hospital, Coleraine, UK

¹Department of Gastroenterology, University College Hospital Galway, Galway, Ireland, ²Tralee institute of Technology, Nursing Department, Tralee, Ireland

¹Department of Internal Medicine, São Paulo State University UNESP, Botucatu, Brazil, ²Department of Nursing, São Paulo State University UNESP, Botucatu, Brazil, ³Department of Surgery, São Paulo State University UNESP, Botucatu, Brazil

University of York, Social Policy and Social Work, York, UK

¹Crohn’s & Colitis UK, 1 Bishops Square, Hatfield, UK, ²Kings College NHS Trust, Gastroenterology, London, UK, ³Homerton University Hospital NHS Foundation Trust, Gastroenterology, London, UK, ⁴Tavistock & Portman NHS Foundation Trust, Nursing Practice- Development & Research, London, UK

¹NIHR Nottingham Biomedical Research Centre and The university of Nottingham- Nottingham Digestive Diseases Centre., Nottingham University Hopitals NHS Trust, Nottingham, UK, ²Kings College London, Florence Nightingale Faculty of Nursing- Midwifery & Palliative Care, London, UK

Beaumont Hospital, Department of Gastroenterology and Hepatology, Dublin, Ireland

¹IBD Clinical Nurse Specialist, IBD Centre Mercy University Hospital, Cork, Ireland, ²Mercy University Hospital- Cork, IBD Centre, Cork, Ireland

¹Department of Medical Surgical Nursing, School of Nursing and Midwifery- Mashhad University of Medical Sciences, Mashhad, Iran- Islamic Republic Of, ²Department of Medical-Surgical Nursing- Nursing and Midwifery Care Research Center, School of Nursing and Midwifery- Mashhad University of Medical Sciences, Mashhad, Iran- Islamic Republic Of, ³Department of Gastroenterology and Hepatology, Ghaem Hospital- Mashhad University of Medicine Science, Mashhad, Iran- Islamic Republic Of, ⁴Social Determinants of Health Research Center- Department of Health Sciences, Mashhad University of Medical Sciences, Mashhad, Iran- Islamic Republic Of

¹University of Saskatchewan, College of Nursing, Saskatoon, Canada, ²University of Saskatchewan, University Library, Saskatoon, Canada, ³University of Saskatchewan, College of Education, Saskatoon, Canada

Gastroenterology, Royal Devon & Exeter NHS Foundation Trust, Exeter, UK

¹Tampere University Hospital- Hatanpää, Vatsakeskus, Valkeakoski, Finland, ²Gastroenterology, Tampere University Hospital, Tampere, Finland, ³Applied Sciences, Tampere University of Applied Sciences, Tampere, Finland