¹King’s College London, Florence Nightingale Faculty of Nursing- Midwifery and Palliative Care, London, UK, ²University of Greenwich, Faculty of Education and Health, London, UK, ³King’s College London, Institute of Psychiatry, London, UK

¹Department Of Gastroenterology, Antrim Area Hospital, Antrim, UK, ²Royal Victoria Hospital, Ambulatory Care Centre, Belfast, UK, ³Department Of Gastroenterology, Causeway Hospital, Coleraine, UK

¹Department of Gastroenterology, University College Hospital Galway, Galway, Ireland, ²Tralee institute of Technology, Nursing Department, Tralee, Ireland

¹Department of Internal Medicine, São Paulo State University UNESP, Botucatu, Brazil, ²Department of Nursing, São Paulo State University UNESP, Botucatu, Brazil, ³Department of Surgery, São Paulo State University UNESP, Botucatu, Brazil

University of York, Social Policy and Social Work, York, UK

¹Crohn’s & Colitis UK, 1 Bishops Square, Hatfield, UK, ²Kings College NHS Trust, Gastroenterology, London, UK, ³Homerton University Hospital NHS Foundation Trust, Gastroenterology, London, UK, ⁴Tavistock & Portman NHS Foundation Trust, Nursing Practice- Development & Research, London, UK

¹NIHR Nottingham Biomedical Research Centre and The university of Nottingham- Nottingham Digestive Diseases Centre., Nottingham University Hopitals NHS Trust, Nottingham, UK, ²Kings College London, Florence Nightingale Faculty of Nursing- Midwifery & Palliative Care, London, UK

Beaumont Hospital, Department of Gastroenterology and Hepatology, Dublin, Ireland

¹IBD Clinical Nurse Specialist, IBD Centre Mercy University Hospital, Cork, Ireland, ²Mercy University Hospital- Cork, IBD Centre, Cork, Ireland

¹Department of Medical Surgical Nursing, School of Nursing and Midwifery- Mashhad University of Medical Sciences, Mashhad, Iran- Islamic Republic Of, ²Department of Medical-Surgical Nursing- Nursing and Midwifery Care Research Center, School of Nursing and Midwifery- Mashhad University of Medical Sciences, Mashhad, Iran- Islamic Republic Of, ³Department of Gastroenterology and Hepatology, Ghaem Hospital- Mashhad University of Medicine Science, Mashhad, Iran- Islamic Republic Of, ⁴Social Determinants of Health Research Center- Department of Health Sciences, Mashhad University of Medical Sciences, Mashhad, Iran- Islamic Republic Of

¹University of Saskatchewan, College of Nursing, Saskatoon, Canada, ²University of Saskatchewan, University Library, Saskatoon, Canada, ³University of Saskatchewan, College of Education, Saskatoon, Canada

Gastroenterology, Royal Devon & Exeter NHS Foundation Trust, Exeter, UK

¹Tampere University Hospital- Hatanpää, Vatsakeskus, Valkeakoski, Finland, ²Gastroenterology, Tampere University Hospital, Tampere, Finland, ³Applied Sciences, Tampere University of Applied Sciences, Tampere, Finland

¹University of Oxford, WIMM, Oxford, UK, ²King’s College London, Florence Nightingale Faculty of Nursing- Midwifery and Palliative Care, London, UK

Royal Devon & Exeter NHS Foundation Trust, Gastroenterology, Exeter, UK

Salamanca Hospital, Digestive system, Salamanca, Spain

King’s College London, Florence Nightingale Faculty of Nursing- Midwifery & Palliative Care, London, UK

¹King’s College London, Adult Nursing, London, UK, ²Gastroenterology, Royal Liverpool University Hospitals Trust, Liverpool, UK

¹Department of Gastroenterology, Icahn School of Medicine at Mt Sinai, New York, NY, USA, ²Department of Gastroenterology, Hospital Clinic Barcelona- IDIBAPS- CIBERehd, Barcelona, Spain, ³Department of Inflammatory Bowel Disease, Amsterdam, Amsterdam University Medical Centers, The Netherlands, ⁴Department of Internal Medicine, University Hospital Schleswig-Holstein, Kiel, Germany, ⁵Department of Medicine, University of Calgary, Calgary, Canada, ⁶Department of Gastroenterology, University Hospital of Nancy - Lorraine University, Vandoeuvre, France, ⁷Department of Internal Medicine, Mayo Clinic, Rochester, MN, USA, ⁸Department of Gastroenterology, Istituto Clinico Humanitas, Rozzano- Milan, Italy, ⁹Department of Gastroenterology, University Hospital CHU of Liège, Liège, Belgium, ¹⁰Department of Gastroenterology, Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy, ¹¹Department of Gastroenterology, University Hospitals Leuven - KU Leuven, Leuven, Belgium, ¹²Department of Gastroenterology, Medical University of Vienna, Vienna, Austria, ¹³Department of Clinical Studies, AbbVie Inc., North Chicago, IL, USA, ¹⁴Department of Pharmacovigillance, AbbVie Inc., North Chicago, IL, USA, ¹⁵Department of Statistics, AbbVie Inc., North Chicago, IL, USA, ¹⁶Department of Gastroenterology, AbbVie Inc., North Chicago, IL, USA, ¹⁷Department of Immunology, AbbVie Deutschland GmbH & Co. KG, Ludwigshafen, Germany, ¹⁸Department of Immunology, AbbVie Inc., North Chicago, IL, USA, ¹⁹Department of Gastroenterology, University of California at San Diego, La Jolla, CA, USA

¹Paediatric Gastroenterology Unit, Lille University Hospital and Lille University, Lille, France, ²Epidemiology and Public Health, Lille University Hospital and Lille University, Lille, France, ³Paediatric Unit, Caen University Hospital, Caen, France, ⁴Paediatric Unit, Havre Hospital, Havre, France, ⁵Paediatric Unit, Saint Vincent Hospital, Lille, France, ⁶Gastroenterology Unit, Lille University Hospital and Lille University, Lille, France, ⁷Gastroenterology Unit, Rouen University Hospital and Rouen University, Rouen, France, ⁸Gastroenterology Unit, Amiens University Hospital and Amiens University, Amiens, France